The EB2017 and EB-CLINET conferences were held at the same venue in Salzburg, from 24 – 27 September 2017. They were run as two conferences with one shared day of the programme. Together, the two conferences provided an update on EB research and its translation to clinical benefit for patients – ‘from lab-bench to bedside’. Altogether, 300 experts from 36 countries attended the combined meetings.
In addition to the main sessions, eleven parallel sessions were held as closed meetings. Expert panels took the opportunity to further develop six different Clinical Practice Guidelines on the themes of hand surgery, anaemia, diagnostics, psychosocial care, physiotherapy, and occupational therapy. Furthermore, an Industry Partnering Panel was held, as well as a meeting of the EB subthematic group of the ERN-Skin, and a meeting about the development of an international EB registry.
Australian researchers Professor Dedee Murrell, Dr Johannes Kern and PhD student Blake Smith presented lectures or posters at this meeting. DEBRA Australia provided travel grants to Dr Kern and Mr Smith to enable them to attend the meeting.
The next International Research Conference is planned for early 2020 in London.