Here are some useful resources and products suggested by EB Families and Supporters in Australia:
If you have any products you think we should add to the list, contact ebfamilysupport@debra.org.au
Patient Information – DEBRA International’s BEST CLINICAL PRACTICE GUIDELINES for skin cancer management in EB
KicKee Pants – Butterfly Babies Clothing
Range of clothes for children with EB.
Ankle biters – Seamless shoes for EB children
Muguet Villa (Co-Owner)
M: 0450509473
Email: muguet@ankle-biters.com
DIY Knee pads
Recommended by Shannon Page for crawling babies.
Bugaboo Bee
Air flow pram for EB babies. From Baby Time P/L
Silver Socks
For EB Simplex use & keep feet cool. Are imported from the UK & supply adults & children. From Briggate Medical.
Gelclair
GELCLAIR is a viscous oral gel designed to aid in the management of lesions or ulcerations within the oral cavity.
Skinnies Web
Range of dressing retention garments for patients with Epidermolysis Bullosa.
Available via order from Defries Industries, contact sales@defries.com.au.
Shoes for people with EB
A comprehensive list of various suggested shoes for people with EB from Louise Stevens, a Clinical Nurse Consultant at The Sydney Childrens Hospital.