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Research Papers

Research PapersDEBRA2026-02-24T12:49:25+10:00

Research Papers

  • The lived experience and supportive care needs of Australian parents caring for children with Epidermolysis Bullosa: a qualitative descriptive analysis (November, 2025)
  • Caring for a child with Epidermolysis Bullosa: a scoping review on the family impacts and support needs
  • Investing in a future free of EB – DEBRA RESEARCH IMPACT SUMMARY 2019
  • The distribution of epidermolysis bullosa in Australia with a focus on rural and remote areas (2016)
  • Patient Information – DEBRA International’s BEST CLINICAL PRACTICE GUIDELINES for skin cancer management in EB (January, 2016)
  • Cytoskeletal protein Flightless I inhibits apoptosis, enhances tumor cell invasion and promotes cutaneous squamous cell carcinoma progression (2015)
  • Pigmented Hair-Thickening Fibers A Camouflage Technique for Alopecia in Patients with Epidermolysis Bullosa
  • Botulinum toxin A injection for chronic anal fissures and anal sphincter spasm improves quality of life in recessive dystrophic epidermolysis bullosa (12 August, 2015)
  • Clinical study of natural wound healing in Dystrophic Epidermolysis Bullosa (October 23, 2014)
  • Understanding the outcomes of a home nursing programme for patients with Epidermolysis Bullosa an Australian perspective (December, 2014)

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DEBRA Australia ABN:
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Email: admin@debra.org.au

Phone: (07) 4693 7003 – Secretary/Administrator Sue McKenna

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