EB Nurse Program
Our Nurse Program is mainly funded by generous support of FGX and their shareholders. We are immensely grateful for their support which has not only allowed us to develop our Nurse program more quickly but also allowed us as a charity to have more stability in provision of this program over the years.
Melbourne, Brisbane & St George
We are pleased to have dedicated EB Nurses in Melbourne, Brisbane and St George. These roles are funded by DEBRA Australia to increase the level of support for EB families within the children’s and adults hospital network, and have recently branched out into the adult sector in Melbourne.
Our EB Nurses are particularly dedicated and committed to providing much needed support and facilitation of the EB Clinics at the hospitals and externally. The program continues to evolve as we identify the needs of our families to ensure better quality of care. In 2016/2017 our nurses have cared for 12 newborn babies / new families, have coordinated 21 EB clinics nationally and have attended 67 meetings with Health Professionals.
Samantha Hay was appointed as our first part time EB Nurse in Qld in 2010 and has done a wonderful job over the years supporting, caring and educating families. As of July 2017 Samantha is now funded by Qld Health and will continue to work from the Lady Cilento Hospital in Brisbane.
Lauren Weston and has recently been appointed as the transition EB Nurse at the Royal Melbourne Hospital for one day a week and will actively facilitate transition for paediatric EB patients from the Children’s Hospital into the adult sector. This new role will compliment her ongoing part time position working from Melbourne Royal Children’s Hospital as well supporting children and families.
Our EB nurses are actively involved with the NZ ANZEB nurse group and regularity liaise with other EB nurses overseas to provide latest advice and support to patients. DEBRA Australia is proud to support continuous education of our EB nurses via our Travel Fellowships and annual Health Professional Day enabling nurses to get latest training and education both overseas and from specialists nationally. Together this ensures that they can provide EB families with the most up to date information on wound management and best practice clinical guidelines developed by DEBRA International.
Our EB nurses also work tirelessly to create awareness and provide education in pre-school, primary and secondary school communities as children transition into and through their education years. Their dedication, care and passion extend outside the clinic setting and they are actively involved in fundraising initiatives and family support such as the EB Picnic recently held in honour of International EB Awarness Week.
DEBRA’s first EB nurse was based in Brisbane in 2010 – this program also extends beyond hospitals to in home nursing support – to read more about in-home nursing support click here.
Supporting EB Nurses
DEBRA Australia is also proud to be supporting EB nurses in other states including Women’s and Children’s Hospital, North Adelaide SA and Sydney Children’s Hospital, Randwick NSW.
DEBRA & the Family Support program are proud to announce Psychologist Katie Trusewicz is available for consultation with individuals and families living with EB in Melbourne. Katie is experienced with working with chronic illnesses and has recently participated in educational sessions on living with EB. Katie is located in Carlton and Malvern and appointments can be scheduled by calling 1300 765 750. In order to assist with accessing consultations, care plans can be provided by your local GP which will provide access to a number of consultation sessions and will streamline the service. If you have any questions or would like to talk to us about scheduling an appointment with Katie, please call Family Support Coordinator Simone Baird on 0413 967 609 or EB Nurse Lauren Weston on 0427 937 699
Dr Katie Trusewicz
B.A. (Psych.), Postgrad. Dip. App. Psych., D. Hlth Psych., MAPS
Katie has a doctorate in health psychology and is a full member of the Australian Psychological Society. She has been practising as a registered psychologist for over ten years. Katie enjoys working with children, adolescents and adults to assist them to manage a wide range of issues and to improve their psychological well-being. Katie has many years of experience working in private practice and has also worked at the Austin and Alfred hospitals and for the Australian Psychological Society.
In addition to working with people with psychological conditions, Katie also works with people who have been diagnosed with medical/health conditions such as diabetes, women’s health issues, irritable bowel syndrome, chronic fatigue syndrome and fibromyalgia. These conditions are often better managed with the assistance of psychological interventions and support. Katie has recently taken part in a program to educate her about the experience of living with different forms of Epidermolysis Bullosa (EB). She is available for sessions with both patients with EB and their family members.
Katie is based in Carlton on Mondays and Tuesdays and in Malvern on Wednesdays and Thursdays. In some circumstances, she is also available for skype or telephone psychology sessions. If you would like further information please call 1300 765 750 or email Katie@positivehealthpsychology.com.au