Nurses attending the EB Health Professionals Symposium in Brisbane 2024
For over 15 years, DEBRA Australia’s EB Nurse Program has provided essential, specialised care and support for individuals and families living with Epidermolysis Bullosa (EB).
Through expert nursing and education, this program supports families in navigating the complex medical, emotional and practical challenges of living with EB. Since 2010, the program has continued to grow and adapt, responding to the evolving needs of families to deliver the highest quality of care.
DEBRA Australia funds specialist EB Nurses in key hospitals across Australia, and supports continuous nurse education through Travel Fellowships and Health Professional Educational Events to ensure global best practice care.
Our dedicated EB Nurses provide specialised support to families through:
- Supporting the facilitation of regular in-hospital EB Clinics
- Providing hands-on wound care and management advice to families
- Rapidly responding when a newborn baby has been diagnosed with EB, to educate and support families through those early, difficult weeks
- Coordinating the multidisciplinary team essential for managing EB, including dermatology, paediatrics, psychology and more
- Acting as the first point of contact for families and providing support through outpatient appointment
- Providing ongoing advice and education to families and school communities from daycare through secondary as required, supporting children as they transition through their education years.
This program extends beyond hospitals to in-home nursing support – visit our dedicated page to read more about In-Home Nursing Support.
We are pleased to have dedicated DEBRA EB Nurses funded and supported in the following locations:
DEBRA funded EB Nurses
- Holly Ferguson (Adult/Transition EB Nurse Consultant)
The Royal Melbourne Hospital
Days of Work: Monday and Thursday
Telephone: (03) 9342 4531
Email: EBNurse@mh.org.au (or rmhderm@mh.org.au on other days)
- Bianca Mirco (EB Clinical Nurse Consultant)
St George Hospital Sydney
Days of Work: Thursdays and Fridays
Mobile: 0499 687 736
Email: bianca.mirco@health.nsw.gov.au
- Erin Sullivan (EB Clinical Nurse Fellowship)
The Royal Children’s Hospital in Melbourne
Days of Work: Mondays and Wednesdays
Mobile: 0409 235 005
Email: ebnurse@rch.org.au
DEBRA Co-funded EB Nurses
- Rebecca Saad (EB Clinical Nurse Consultant)
Sydney Children’s Hospital Randwick
Days of Work: 5 days per fortnight
Telephone: (02) 9382 0389
Email: rebecca.saad@health.nsw.gov.au
Previously Funded Nurse Positions
- Lauren Weston (Paediatric EB Nurse Consultant)
Royal Children’s Hospital Melbourne – Dermatology Department
Days of Work: Monday to Friday 8am – 4.30pm
Telephone: (03) 9345 5135 or Mobile: 0427 937 699
Email: lauren.weston@rch.org.au
- Kelly Fraser (EB Clinical Nurse), covering Bonnie McNeill’s maternity leave until mid-2026
Queensland Children’s Hospital
Days of Work: Monday & every second Thursday
Telephone: (07) 3068 2045 or Dermatology Outpatients (07) 3068 1581
Email: CHQ_EBnurse@health.qld.gov.au
Other Supporting Nurses
- Emma Baker (Dermatology Nurse Consultant)
Women’s & Children’s Hospital Adelaide
Days of Work: Tuesday, Thursday and Friday
Mobile: 0435963861
Email: Emma.Baker@sa.gov.au