News

Lauren Weston presents at US Paediatric Conference

Lauren Weston, EB Nurse Consultant from The Royal Children’s Hospital in Melbourne, has shared her gratitude for attending the annual Paediatric Complex Care Conference in Arlington, VA in the USA at the end of September last year.  Lauren was awarded a travel grant from DEBRA Australia to attend this conference, which focused on the [...]

2025-06-23T10:51:06+10:00June 23rd, 2025|

Congratulations on the arrival of babies Enrico and Beau!

A huge congratulations to new parents Hanadi and Eriko, and most recently our Ambassador Matt and fiancé Brielle, on the safe arrival of their baby boys this year!   With the assistance of DEBRA Australia’s EB Services and a Follow Your Dreams grant, the parents accessed genetic screening of their embryos to support a future [...]

2025-06-23T09:41:25+10:00June 23rd, 2025|

Bubbles and Butterflies is back for 2025!

Following the tremendous success of 2024, the Bubbles and Butterflies luncheon will be back in 2025!  This fun-filled luncheon will be back on Friday 12th September, 2025, and held at the Caulfield Racecourse in Melbourne. Another unforgettable day is planned - filled with music, dancing, raffles, and prizes – all in aid of DEBRA [...]

2025-06-23T09:22:28+10:00June 23rd, 2025|

Join us for the DEBRA Australia Trivia Spectacular this July

Following the success of our Long Weekend Laughs Comedy nights, this year our DEBRA Australia Ambassador and Comedian Daniel Connell, will be hosting the funniest trivia night you have ever experienced! The Trivia Spectacular will be held on Saturday, 26th July, and will include three rounds of trivia, games, prizes, and a raffle that [...]

2025-06-20T15:28:43+10:00June 20th, 2025|

Inside a family’s experience of living with EB

Sofia has recessive dystrophic EB. Sofia’s parents have not only risen to the challenge of caring for a child with EB since the birth of Sofia, but also followed their dream of having a healthy sibling for Sofia, with the support of DEBRA Australia. Together we can help support more young families living with [...]

2024-11-22T14:06:15+10:00November 22nd, 2024|

EB Awareness Week 2024

Thank You For Joining Us Thank you for joining us in raising awareness for Epidermolysis Bullosa (EB) during #EBAwarenessWeek2024! Your support, shares, and voices have amplified the message, bringing hope and visibility to the EB community. This week was filled with stories, insights, and the powerful connections that unite us in the journey for [...]

2024-11-19T13:41:57+10:00November 13th, 2024|

Bubbles and Butterflies Ladies Luncheon a Success

The inaugural Bubbles and Butterflies Ladies Luncheon has triumphantly raised over $38,000 net for DEBRA Australia programs. Hosted by DEBRA Australia ambassador and board member Deanna Pope, the event captured the vibrant spirit of the Spring Racing Carnival at Caulfield Racecourse. Attendees showcased their finest Spring Carnival fashions, with a captivating 'Fashions on the [...]

2024-11-06T09:24:37+10:00November 5th, 2024|
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