On Wednesday 16 September, during AFL Preliminary Final week, the Toccolan Club hosted a fantastic business lunch at the MCG in support of DEBRA Australia. The event was MC’d by the legendary Sam Kekovich, with AFL greats Mark Harvey, Brendan Fevola, James Hird and Terry Daniher joining him as panellists in support of DEBRA and [...]
Fabulous fashion, fun & fundraising! A huge thank you to everyone who joined us for Bubbles & Butterflies 2026. Please see our full photo gallery from the event below. If you share any photos, don't forget to tag us @debraaustralia and use the hashtags #BubblesAndButterflies #FightEB [...]
NEBDs updates for August 2026 The below new products will be available for NEBDS participants to order from 1st September 2026. Supplier Product Description Size Schulke Australia Octenilin Wound Irrigation Solution 350ml Schulke Australia Octenilin Wound Gel 20ml Schulke Australia Octenisan Wash Lotion 150ml Schulke Australia Octenisan Wash Lotion 500ml [...]
The most recent recipient of the Carmel Harris Follow Your Dreams Grant was Ruby. Here she recounts her incredible experience at Jamala Wildlife Lodge where her ‘wildest’ dream came true! “This year I was lucky enough to receive the Carmel Harris Follow Your Dreams Grant. With this opportunity, I [...]
DEBRA Australia welcomes today’s announcement from The Royal Children’s Hospital Melbourne (RCH), marking the first use of beremagene geperpavec (B-VEC), also known as Vyjuvek, in Australia. Delivered at RCH through the Therapeutic Goods Administration’s Special Access Scheme (SAS), and supported by generous philanthropic funding, this treatment has been made available to one of our youngest [...]
Thank you to our generous donors Orla and Michael, who gifted a holiday over Christmas, allowing EB mum Beck and her son Judd to enjoy an island getaway for the week. After the holiday, Beck was keen to share their appreciation: “My son, Judd, and I were unexpectedly gifted [...]
DEBRA Australia would like to honour long-time supporter Kenneth Stephens and celebrate some of the incredible things he achieved in his almost 93 years. Kenny from Modbury Heights in South Australia took on many impressive feats over the years to support DEBRA Australia, driven by the fact that two of his great-grandchildren lived with Epidermolysis Bullosa [...]
Thanks to DEBRA Australia’s EB research grant funding, PhD student Dhanya Shanmuganathan was able to present her DDEB research findings to an international audience of clinicians and researchers earlier this year. She was awarded $3,500 in funding to attend the DEBRA International EB Congress in Brazil in January 2026. The Congress provided a [...]
If you were unable to attend the EB Education Forum held last October, DEBRA Australia are pleased to share that, in partnership with Wounds Australia, we will be hosting the event online as a lunchtime Zoom session on Thursday, 12th March 2026. We are warmly inviting families living with Epidermolysis Bullosa (EB), and multidisciplinary [...]
Many in our community may know Deanna Pope as the incredible driving force behind Bubbles and Butterflies, and now she’s bringing that same passion to her biggest challenge yet – the EB Butterfly Walk – a 750km journey from Melbourne to Adelaide between 18 March and 8 April. Despite Epidermolysis Bullosa (EB) shaping her [...]
