The most recent recipient of the Carmel Harris Follow Your Dreams Grant was Ruby. Here she recounts her incredible experience at Jamala Wildlife Lodge where her ‘wildest’ dream came true! “This year I was lucky enough to receive the Carmel Harris Follow Your Dreams Grant. With this opportunity, I [...]
DEBRA Australia welcomes today’s announcement from The Royal Children’s Hospital Melbourne (RCH), marking the first use of beremagene geperpavec (B-VEC), also known as Vyjuvek, in Australia. Delivered at RCH through the Therapeutic Goods Administration’s Special Access Scheme (SAS), and supported by generous philanthropic funding, this treatment has been made available to one of our youngest [...]
Thank you to our generous donors Orla and Michael, who gifted a holiday over Christmas, allowing EB mum Beck and her son Judd to enjoy an island getaway for the week. After the holiday, Beck was keen to share their appreciation: “My son, Judd, and I were unexpectedly gifted [...]
DEBRA Australia would like to honour long-time supporter Kenneth Stephens and celebrate some of the incredible things he achieved in his almost 93 years. Kenny from Modbury Heights in South Australia took on many impressive feats over the years to support DEBRA Australia, driven by the fact that two of his great-grandchildren lived with Epidermolysis Bullosa [...]
Thanks to DEBRA Australia’s EB research grant funding, PhD student Dhanya Shanmuganathan was able to present her DDEB research findings to an international audience of clinicians and researchers earlier this year. She was awarded $3,500 in funding to attend the DEBRA International EB Congress in Brazil in January 2026. The Congress provided a [...]
If you were unable to attend the EB Education Forum held last October, DEBRA Australia are pleased to share that, in partnership with Wounds Australia, we will be hosting the event online as a lunchtime Zoom session on Thursday, 12th March 2026. We are warmly inviting families living with Epidermolysis Bullosa (EB), and multidisciplinary [...]
Many in our community may know Deanna Pope as the incredible driving force behind Bubbles and Butterflies, and now she’s bringing that same passion to her biggest challenge yet – the EB Butterfly Walk – a 750km journey from Melbourne to Adelaide between 18 March and 8 April. Despite Epidermolysis Bullosa (EB) shaping her [...]
Each October, the DEBRA Australia community unites to show their incredible support for International EB Awareness Week – and this year was no exception. This year, more than 200 participants joined us for Walk for Wings, raising over $19,000 to support children and individuals living with EB. Walking events were held in Hobart, Brisbane, [...]
Back in October, our long-term supporters Valenti Golf Club, hosted their annual charity golf day at The Melbourne Airport Golf Club in support of DEBRA Australia. The event drew an impressive turnout, with 66 attendees coming together to raise almost $24,000 for Australians living with Epidermolysis Bullosa (EB) – an incredible effort and the [...]
Living with the daily demands of Epidermolysis Bullosa (EB) can be challenging, but for Yakub, support from the Kate Turner Fund has made a world of difference. Through DEBRA Australia’s assistance, Yakub has been able to access equine therapy sessions that support both his physical and mental well-being. "This therapy has helped Yakub build [...]
