Two of our EB families have recently returned home after staying at the Bright Family Retreat, a new DEBRA Australia Family Support Program initiative developed to support our community through their journey living with EB. The Dela Cruz and Morris families, who both have children living with EB, each spent a few days at [...]
The Walter Eberhard Schroeder Dermatology Research Scholarship (USyd RTP Rate for 3.5 years) is a distinguished award created to promote innovative research in dermatology, with a particular focus on advancing knowledge in the diagnosis and treatment of skin diseases. Among the category of skin disorders, Epidermolysis Bullosa (EB) represents an area of high priority. [...]
Held on Friday 12th September, Bubbles and Butterflies 2025 was a day of style, generosity, and community – and a beautiful reminder of the impact we can have when we come together. This year, the event has raised an incredible $48,000 for families living with Epidermolysis Bullosa (EB). Created [...]
On a freezing Saturday afternoon in July, warmth came not from the weather, but from the generosity and spirit of a lively crowd gathered at The Comic’s Lounge in North Melbourne. Supporters came together for an entertaining afternoon of trivia, hosted by our wonderful Ambassador Daniel Connell, and a special stand-up set by icon [...]
DEBRA Australia and Wounds Australia invite multidisciplinary teams involved in Epidermolysis Bullosa (EB) care, including dermatologists, nurses, and researchers, to attend our premier EB Education Forum on Thursday, 23 October 2025 in Melbourne. Families living with EB are also warmly welcomed to attend. This exclusive educational event will be held just ahead of EB Awareness Week (25-31 October) [...]
Thank you to everyone who joined us for Bubbles and Butterflies 2025. Please see our full photo gallery from the event below. If you share any photos, don't forget to tag us @debraaustralia [...]
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DEBRA Australia Partners with Soft Love Australia to Support Families Living with Epidermolysis Bullosa (EB) - 10% of Profits to be Donated DEBRA Australia and Soft Love Australia are proud to announce a new partnership, aimed at raising awareness and much-needed funds for children and individuals living with EB. Recently launched in Australia, Soft [...]
As part of the international DEBRA community, we were excited to see Brett Kopelan, Executive Director of DEBRA America, speak at the FDA’s Cell and Gene Therapy Roundtable on 5th June, to ensure that EB is centre stage in decision making. Sharing his own story of how his daughter was diagnosed with Recessive Dystrophic [...]
During the Royal visit of King Charles and Queen Camilla in October, our consulting Podiatrist, Dr Tariq Khan, was honoured to be invited to a reception held by Prime Minister Anthony Albanese at Parliament House in Canberra. Dr Khan had the privilege of speaking with Their Majesties at the reception, where they discussed current [...]
