News

Valenti Golf Club raises over $11,000 in support of DEBRA Australia

Last Friday, our General Manager, Lise Angus had the pleasure of attending the 2023 Valenti Golf Club charity day, of which DEBRA Australia was the beneficiary. Incredibly, the club raised a HUGE $11,500 for our EB community this year. We are so grateful to have the support of Valenti [...]

2024-02-13T12:42:28+10:00October 3rd, 2023|

Comics raise over $15,000 for EB community

Some of Australia's best comics came together in Melbourne over the June Long Weekend to raise money for our EB community. More than 300 people attended the Long Weekend Laughs event, where comedians like Cal Wilson, Dilruk Jayasinha performed alongside our incredible host and organiser Daniel Connell. Our bellies [...]

2023-07-23T12:50:54+10:00June 20th, 2023|

FDA approval of a new treatment for dystrophic EB

We have received the news from DEBRA International of the FDA approval of a new treatment for dystrophic epidermolysis bullosa (DEB). The treatment, known as VYJUVEK™, is a topical gel which must be administered by a healthcare professional. While this is great news for the DEB community, we are still unsure when this treatment will [...]

2023-07-23T12:48:46+10:00May 26th, 2023|

Thank you Brighter Days

For over 10 years now the Brighter Days festival has supported DEBRA Australia's programs and our EB community by raising more than $1,000,000. This year, the team exceeded our expectations, when we received an incredible donation of $230,000.  We want to thank the entire Brighter Days committee for their tireless work on behalf [...]

2023-07-23T12:51:49+10:00May 23rd, 2023|

Supporting EB families affected by conflict

DEBRA International is continuing to provide support to DEBRA International to work with key stakeholders in delivering dressings, medicines, and nutritional needs to EB families fleeing conflict. Our DEBRA International representative Dr Zlatko Kopecki has been a large part of that effort working with a team of Executives, partners from Red Cross Singapore, [...]

2023-02-03T10:03:38+10:00January 24th, 2023|

Jamberoo Superoos raise thousands for EB community

Last weekend the Jamberoo Superoo's Senior Rugby League club took to the field for their annual charity match, this year electing to raise funds for DEBRA Australia. More than $4500 was raised on the day, with players donning special DEBRA branded jerseys to mark the occasion. The event was attended by EB Warrior [...]

2022-05-10T17:27:54+10:00May 10th, 2022|

2022 Upstream Challenge

Join team DEBRA at the 2022 Upstream Challenge What is the Upstream Challenge? The Upstream Challenge is an annual fundraising walk (or run) from the CBD to Donvale, Melbourne, which sees participants complete a 20km or 50km course.  The event has been running for 17 years, but this year is DEBRA Australia's first [...]

2022-02-24T14:42:06+10:00February 7th, 2022|

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