Lauren Weston, EB Nurse Consultant from The Royal Children’s Hospital in Melbourne, has shared her gratitude for attending the annual Paediatric Complex Care Conference in Arlington, VA in the USA at the end of September last year. Lauren was awarded a travel grant from DEBRA Australia to attend this conference, which focused on the [...]
A huge congratulations to new parents Hanadi and Eriko, and most recently our Ambassador Matt and fiancé Brielle, on the safe arrival of their baby boys this year! With the assistance of DEBRA Australia’s EB Services and a Follow Your Dreams grant, the parents accessed genetic screening of their embryos to support a future [...]
Following the tremendous success of 2024, the Bubbles and Butterflies luncheon will be back in 2025! This fun-filled luncheon will be back on Friday 12th September, 2025, and held at the Caulfield Racecourse in Melbourne. Another unforgettable day is planned - filled with music, dancing, raffles, and prizes – all in aid of DEBRA [...]
Following the success of our Long Weekend Laughs Comedy nights, this year our DEBRA Australia Ambassador and Comedian Daniel Connell, will be hosting the funniest trivia night you have ever experienced! The Trivia Spectacular will be held on Saturday, 26th July, and will include three rounds of trivia, games, prizes, and a raffle that [...]
Sofia has recessive dystrophic EB. Sofia’s parents have not only risen to the challenge of caring for a child with EB since the birth of Sofia, but also followed their dream of having a healthy sibling for Sofia, with the support of DEBRA Australia. Together we can help support more young families living with [...]
Thank You For Joining Us Thank you for joining us in raising awareness for Epidermolysis Bullosa (EB) during #EBAwarenessWeek2024! Your support, shares, and voices have amplified the message, bringing hope and visibility to the EB community. This week was filled with stories, insights, and the powerful connections that unite us in the journey for [...]
The inaugural Bubbles and Butterflies Ladies Luncheon has triumphantly raised over $38,000 net for DEBRA Australia programs. Hosted by DEBRA Australia ambassador and board member Deanna Pope, the event captured the vibrant spirit of the Spring Racing Carnival at Caulfield Racecourse. Attendees showcased their finest Spring Carnival fashions, with a captivating 'Fashions on the [...]
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-By Dr Albert Mellick Albert Mellick is a group leader at the Ingham Institute for Applied Medical Research, and Senior research fellow, UNSW and Associate Professor, University of Sydney. His laboratory has been funded by grants from DEBRA Australia since 2018. Dr Zlatko Kopeci (left) pictured at the EB MENA [...]
