The countdown has begun for the 13th edition of Rare Disease Day! Rare Disease Day is on the 29 of February 2020, the rarest day of the year. The campaign is open to everyone to get involved to raise awareness for people living with a rare disease all over the world! Thousands of Rare [...]
Mark & Di Robinson distribute fruit and vegetables from the Melbourne Market Authority to the whole of Victoria. Over 100 people gathered to help celebrate their success. Mark and Di are strong supporters of the Melbourne Market Golf day and promised to display the DEBRA logo on their next new semi-trailer which was unveiled on [...]
A message from the President of the Brighter Days Foundation A MESSAGE FROM THE PRESIDENT Hi everyone, On behalf of the Brighter Days Committee I’d like to share some news about Brighter Days 2020. Thanks to your amazing support the festival has continued to grow each year. It was obvious to everyone who attended last [...]
Congratulations to Dean Clifford who has been inducted into Disability Employment Australia's Hall of Fame. From the Disability Employment Australia website: Disability Employment Australia has enjoyed a long-standing relationship with Dean, and one of his first speaking opportunities was at a DEA (then known as ACE) conference back in 2004. Dean’s presentation received a standing [...]
The Board of DEBRA Australia is delighted to announce that Lise Angus has been appointed to the newly created role of General Manager. Lise brings a strong background in the corporate and not-for-profit sectors, with expertise in team development, formulating and developing organisational strategies, relationship management, marketing and fundraising. She has spent several years with [...]
On November 21, 2018 our Family Support Co-ordinator Simone Baird and 3 other volunteers from Perth and Melbourne visited Hai Phong, Vietnam to work with a charity group known as Niem Tin and the EB community. Representing DEBRA International and the EB Without Borders program was an absolute honour and an amazing experience which will [...]
Congratulations to Zoe Hanvey who was selected at the Follow Your Dreams Recipient for 2018. Here is Zoe's story told by her father David: Earlier this year, Zoe made a wish (without our knowledge !) to DEBRA. Her wish was to be able to go on a waterslide, where she would feel safe due to [...]
DEBRA Australia is very excited and proud to announce that through the Future Generation partnership we have been awarded $193,422 to support DEBRA and our EB Nurse programs. This has all been done through philanthropic investment vehicles that create wealth for shareholders and support Australia's future generation through charitable donations. By providing their services pro [...]
During December we asked you to helped DEBRA Australia light up the tree and give hope to EB Families across Australia. With your amazing support we were able to raise over $3,145! Your donations ensure that we can continue to reach out to all individuals living with ‘the worst disease you’ve never heard of Epidermolysis [...]
Recently in April, EB Mum and DEBRA Australia Board Member Mel used her recent holiday to Bail to also help support some of the families living in Bali impacted by EB by delivering some much needed bandages. Mel was kind enough to share her story with us: On Tuesday 3rd April we were picked up by [...]
