Thanks to DEBRA Australia’s EB research grant funding, PhD student Dhanya Shanmuganathan was able to present her DDEB research findings to an international audience of clinicians and researchers earlier this year. She was awarded $3,500 in funding to attend the DEBRA International EB Congress in Brazil in January 2026. The Congress provided a [...]
If you were unable to attend the EB Education Forum held last October, DEBRA Australia are pleased to share that, in partnership with Wounds Australia, we will be hosting the event online as a lunchtime Zoom session on Thursday, 12th March 2026. We are warmly inviting families living with Epidermolysis Bullosa (EB), and multidisciplinary [...]
Many in our community may know Deanna Pope as the incredible driving force behind Bubbles and Butterflies, and now she’s bringing that same passion to her biggest challenge yet – the EB Butterfly Walk – a 750km journey from Melbourne to Adelaide between 18 March and 8 April. Despite Epidermolysis Bullosa (EB) shaping her [...]
Each October, the DEBRA Australia community unites to show their incredible support for International EB Awareness Week – and this year was no exception. This year, more than 200 participants joined us for Walk for Wings, raising over $19,000 to support children and individuals living with EB. Walking events were held in Hobart, Brisbane, [...]
Back in October, our long-term supporters Valenti Golf Club, hosted their annual charity golf day at The Melbourne Airport Golf Club in support of DEBRA Australia. The event drew an impressive turnout, with 66 attendees coming together to raise almost $24,000 for Australians living with Epidermolysis Bullosa (EB) – an incredible effort and the [...]
Living with the daily demands of Epidermolysis Bullosa (EB) can be challenging, but for Yakub, support from the Kate Turner Fund has made a world of difference. Through DEBRA Australia’s assistance, Yakub has been able to access equine therapy sessions that support both his physical and mental well-being. "This therapy has helped Yakub build [...]
After a perfectly routine pregnancy, it was a shock to her parents when Ella was born with missing skin on her foot, knee and left ankle. Until their daughter Ella's arrival, Erica and Tom had never heard of Epidermolysis Bullosa (EB). Thankfully, their obstetrician's prior knowledge of EB ensured her parents were connected with a [...]
Two of our EB families have recently returned home after staying at the Bright Family Retreat, a new DEBRA Australia Family Support Program initiative developed to support our community through their journey living with EB. The Dela Cruz and Morris families, who both have children living with EB, each spent a few days at [...]
The Walter Eberhard Schroeder Dermatology Research Scholarship (USyd RTP Rate for 3.5 years) is a distinguished award created to promote innovative research in dermatology, with a particular focus on advancing knowledge in the diagnosis and treatment of skin diseases. Among the category of skin disorders, Epidermolysis Bullosa (EB) represents an area of high priority. [...]
Held on Friday 12th September, Bubbles and Butterflies 2025 was a day of style, generosity, and community – and a beautiful reminder of the impact we can have when we come together. This year, the event has raised an incredible $48,000 for families living with Epidermolysis Bullosa (EB). Created [...]
