News

DEBRA Australia community unites for EB Awareness Week 2025

Each October, the DEBRA Australia community unites to show their incredible support for International EB Awareness Week – and this year was no exception. This year, more than 200 participants joined us for Walk for Wings, raising over $19,000 to support children and individuals living with EB.  Walking events were held in Hobart, Brisbane, [...]

2025-12-16T22:50:37+10:00December 16th, 2025|

Valenti Golf Day raises almost $24,000 for Australians living with EB

Back in October, our long-term supporters Valenti Golf Club, hosted their annual charity golf day at The Melbourne Airport Golf Club in support of DEBRA Australia. The event drew an impressive turnout, with 66 attendees coming together to raise almost $24,000 for Australians living with Epidermolysis Bullosa (EB) – an incredible effort and the [...]

2025-12-16T20:52:28+10:00December 16th, 2025|

Yakub is thriving thanks to support from the Kate Turner Fund

Living with the daily demands of Epidermolysis Bullosa (EB) can be challenging, but for Yakub, support from the Kate Turner Fund has made a world of difference. Through DEBRA Australia’s assistance, Yakub has been able to access equine therapy sessions that support both his physical and mental well-being.  "This therapy has helped Yakub build [...]

2025-12-16T00:31:08+10:00December 16th, 2025|

Ella’s Story: How Your Kindness Can Bring Extraordinary Care to Extraordinary Families

After a perfectly routine pregnancy, it was a shock to her parents when Ella was born with missing skin on her foot, knee and left ankle. Until their daughter Ella's arrival, Erica and Tom had never heard of Epidermolysis Bullosa (EB). Thankfully, their obstetrician's prior knowledge of EB ensured her parents were connected with a [...]

2025-11-28T10:41:54+10:00November 28th, 2025|

Our first families stay at the Bright Family Retreat!

Two of our EB families have recently returned home after staying at the Bright Family Retreat, a new DEBRA Australia Family Support Program initiative developed to support our community through their journey living with EB.   The Dela Cruz and Morris families, who both have children living with EB, each spent a few days at [...]

2025-09-29T08:29:59+10:00September 29th, 2025|

Walter Eberhard Schroeder Scholarship to focus on patients at high risk of squamous cell carcinoma, including individuals living with EB

The Walter Eberhard Schroeder Dermatology Research Scholarship (USyd RTP Rate for 3.5 years) is a distinguished award created to promote innovative research in dermatology, with a particular focus on advancing knowledge in the diagnosis and treatment of skin diseases. Among the category of skin disorders, Epidermolysis Bullosa (EB) represents an area of high priority. [...]

2025-09-23T10:17:52+10:00September 23rd, 2025|

Bubbles and Butterflies 2025: Fashion, Fun, and Fundraising for Australians living with EB

Held on Friday 12th September, Bubbles and Butterflies 2025 was a day of style, generosity, and community – and a beautiful reminder of the impact we can have when we come together. This year, the event has raised an incredible $48,000 for families living with Epidermolysis Bullosa (EB).  Created [...]

2025-09-23T11:43:18+10:00September 22nd, 2025|

The Comic’s Lounge alive with trivia, laughter, and community for the DEBRA Australia Trivia Spectacular

On a freezing Saturday afternoon in July, warmth came not from the weather, but from the generosity and spirit of a lively crowd gathered at The Comic’s Lounge in North Melbourne.  Supporters came together for an entertaining afternoon of trivia, hosted by our wonderful Ambassador Daniel Connell, and a special stand-up set by icon [...]

2025-09-22T13:53:04+10:00September 22nd, 2025|

Register Now: DEBRA Australia and Wounds Australia’s EB Education Forum 2025

DEBRA Australia and Wounds Australia invite multidisciplinary teams involved in Epidermolysis Bullosa (EB) care, including dermatologists, nurses, and researchers, to attend our premier EB Education Forum on Thursday, 23 October 2025 in Melbourne. Families living with EB are also warmly welcomed to attend. This exclusive educational event will be held just ahead of EB Awareness Week (25-31 October) [...]

2025-09-18T22:54:25+10:00September 18th, 2025|
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