What is EB?
Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
For more information check out What is EB?
What Can You Do?
Latest News
Lauren Weston presents at US Paediatric Conference
Lauren Weston, EB Nurse Consultant from The Royal Children’s Hospital in Melbourne, has shared her gratitude for attending the annual Paediatric Complex Care Conference in Arlington, VA in the USA at the end of [...]
Congratulations on the arrival of babies Enrico and Beau!
A huge congratulations to new parents Hanadi and Eriko, and most recently our Ambassador Matt and fiancé Brielle, on the safe arrival of their baby boys this year! With the assistance of DEBRA Australia’s [...]
Bubbles and Butterflies is back for 2025!
Following the tremendous success of 2024, the Bubbles and Butterflies luncheon will be back in 2025! This fun-filled luncheon will be back on Friday 12th September, 2025, and held at the Caulfield Racecourse in [...]
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