Working for a life free from pain.
What Is EB?
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What Is PB4EB?
DEBRA Australia | Working for a life free from painDEBRA2020-04-22T21:36:14+10:00
What is EB?
Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
Help us raise awareness of EB and what DEBRA Australia is doing by talking to your friends, family and work colleagues.
Get involved by fundraising yourself throughout the year, or participating in one of our annual events such as the Dine and Donate campaign during International EB Awareness Week.
DEBRA Australia is primarily run by volunteers who all selflessly use their own time to contribute. That means when you donate to DEBRA Australia the money is going directly to help support the families in need.
By leaving a bequest in your Will to DEBRA Australia you are helping us provide the support to EB families in Australia.
As our organisation is experiencing uncertain times due to the current public health emergency, we are struggling with our ability to raise funds for our EB families and the life changing programs we deliver. [...]
Dear Friends, During these difficult times, we wanted to touch base with you all, as we manage the uncertainty of COVID-19 (Coronavirus) within our community, our country and the world. We appreciate that this is [...]