What is EB?
Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
For more information check out What is EB?
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Latest News
We need your help more than ever right now!
As our organisation is experiencing uncertain times due to the current public health emergency, we are struggling with our ability to raise funds for our EB families and the life changing programs we deliver. [...]
Covid-19 Response from DEBRA Australia General Manager
Dear Friends, During these difficult times, we wanted to touch base with you all, as we manage the uncertainty of COVID-19 (Coronavirus) within our community, our country and the world. We appreciate that this is [...]
Rare Disease Day 2020
The countdown has begun for the 13th edition of Rare Disease Day! Rare Disease Day is on the 29 of February 2020, the rarest day of the year. The campaign is open to everyone [...]
