What is EB?
Epidermolysis Bullosa (EB) is a rare genetic disorder whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
For more information check out What is EB?
What Can You Do?
Latest News
Ella’s Story: How Your Kindness Can Bring Extraordinary Care to Extraordinary Families
After a perfectly routine pregnancy, it was a shock to her parents when Ella was born with missing skin on her foot, knee and left ankle. Until their daughter Ella's arrival, Erica and Tom [...]
Our first families stay at the Bright Family Retreat!
Two of our EB families have recently returned home after staying at the Bright Family Retreat, a new DEBRA Australia Family Support Program initiative developed to support our community through their journey living with [...]
Walter Eberhard Schroeder Scholarship to focus on patients at high risk of squamous cell carcinoma, including individuals living with EB
The Walter Eberhard Schroeder Dermatology Research Scholarship (USyd RTP Rate for 3.5 years) is a distinguished award created to promote innovative research in dermatology, with a particular focus on advancing knowledge in the diagnosis [...]
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