What is EB?
Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
For more information check out What is EB?
What Can You Do?
Latest News
Our first families stay at the Bright Family Retreat!
Two of our EB families have recently returned home after staying at the Bright Family Retreat, a new DEBRA Australia Family Support Program initiative developed to support our community through their journey living with [...]
Walter Eberhard Schroeder Scholarship to focus on patients at high risk of squamous cell carcinoma, including individuals living with EB
The Walter Eberhard Schroeder Dermatology Research Scholarship (USyd RTP Rate for 3.5 years) is a distinguished award created to promote innovative research in dermatology, with a particular focus on advancing knowledge in the diagnosis [...]
Bubbles and Butterflies 2025: Fashion, Fun, and Fundraising for Australians living with EB
Held on Friday 12th September, Bubbles and Butterflies 2025 was a day of style, generosity, and community – and a beautiful reminder of the impact we can have when [...]
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