What is EB?
Epidermolysis Bullosa (EB) is a rare genetic disorder whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
For more information check out What is EB?

What Can You Do?
Latest News
Deanna Pope is taking on an extraordinary challenge for EB families
Many in our community may know Deanna Pope as the incredible driving force behind Bubbles and Butterflies, and now she’s bringing that same passion to her biggest challenge yet – the EB Butterfly Walk [...]
DEBRA Australia community unites for EB Awareness Week 2025
Each October, the DEBRA Australia community unites to show their incredible support for International EB Awareness Week – and this year was no exception. This year, more than 200 participants joined us for Walk [...]
Valenti Golf Day raises almost $24,000 for Australians living with EB
Back in October, our long-term supporters Valenti Golf Club, hosted their annual charity golf day at The Melbourne Airport Golf Club in support of DEBRA Australia. The event drew an impressive turnout, with 66 [...]





















