What is EB?
Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
For more information check out What is EB?
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Latest News
My EB Story, By Connor Fitzpatrick.
Obstacles don’t define us, but the way we tackle them can. I haven’t let EB stop me from living my life. I want to be proof to others that they can overcome adversity to achieve [...]
Promising Outcome from EB Research Collaboration (Austria & Australia)
Article written by A/Prof Albert Mellick As a scientist based in Australian academia over the last 20 years I am well aware of the challenges and limitations of relying solely on government funded research. Despite [...]
Things To Do While Staying At Home
Are you getting bored and struggling to fill the time whilst having to stay at home? The EB Family Support team has searched all over to bring you a list of great resources to [...]
