What is EB?
Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
For more information check out What is EB?
What Can You Do?
Latest News
DEBRA America’s Executive Director Brett Kopelan speaks at FDA Roundtable
As part of the international DEBRA community, we were excited to see Brett Kopelan, Executive Director of DEBRA America, speak at the FDA’s Cell and Gene Therapy Roundtable on 5th June, to ensure that [...]
Consultant Podiatrist Dr Tariq Khan represents EB during Royal visit
During the Royal visit of King Charles and Queen Camilla in October, our consulting Podiatrist, Dr Tariq Khan, was honoured to be invited to a reception held by Prime Minister Anthony Albanese at Parliament [...]
Crowds gathered for the Brighter Days Festival
Excitement was in the air as crowds gathered for the Brighter Days Festival, which was held again over the Labour Day long weekend in March, in Bright, Victoria. It was a time to connect, [...]
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