Thank you for showing interest in becoming an amazing fundraiser for children and their families living with EB…

EB is the worst disease you have never heard of and this is why it is even more important that we have special people like you helping us raise much needed awareness and dollars.

Every dollar donated helps with the financial strains of our families living with EB and our very special programs that receive no government funding. We couldn’t do it without special people like you. You really are amazing!

Don’t forget we are always here to help you along the way. So take the next step on your journey in helping precious Butterfly Children.


If you wish to discuss your fundraiser or need some help with idea’s get in touch with If you wish to hold an offline Fundraiser you can do so by filling our Fundraising form and sending it back to We will be in touch shortly after to help you reach your goal.

Download Fundraising Form