Nursing Support Program
DEBRA Australia with the help of generous donors have been funding the in home nursing support program for our most severe EB individuals nationally. Most families involved in this care have found benefits in having some respite and additional support. The program offers In Home Nursing Support which includes registered nurses or support workers specifically trained in EB for 2 visits per week / 3 hour sessions, who will provide direct wound care, bath and dressing changes. This program supports all ages of individuals with EB and focuses on support within the family home in aim to relieve the stress and on-going, high demand of EB care.
Our National Family Support Coordinator attends 13 EB clinics around the country at different various times of the year. During these times she liaises with EB families, nurses and other health professionals to ensure EB related needs are being met. Our Coordinator has the capacity to link families in with the NDIS and other relevant care support providers. The Family Support program also provides opportunities for families to attend bi-annual EB camps, annual EB picnics, Youth programs and Respite weekends for mums. We offer support to families during bereavement and attend funerals of loved ones who have sadly passed.
If you are interested in gaining support from this program, please contact our Family Support coordinator on 0413 967 609 or via email simone.baird@debra.org.au or ebfamilysupport@debra.org.au.