As part of the international DEBRA community, we were excited to see Brett Kopelan, Executive Director of DEBRA America, speak at the FDA’s Cell and Gene Therapy Roundtable on 5th June, to ensure that EB is centre stage in decision making.
Sharing his own story of how his daughter was diagnosed with Recessive Dystrophic Epidermolysis Bullosa and their battle with Squamous Cell Carcinoma, Kopelan also highlighted the importance of listening to the patient’s voice.
Watch the Roundtable below (Brett Kopelan speaks at 1:30:22):