DEBRA Australia supporter Future Generation Investment Company is pleased to announce its semi-annual Shareholder Presentations and Investment Forum, held in November this year. The Investment Forum will be held in Melbourne on the 30th of November at the Melbourne Convention and Exhibition Centre. The Shareholder Presentations will be held in many locations throughout Australia. For all the [...]
What amazing determination and courage Andrew Biszczak has shown running from Victor Harbor in South Australia to Brisbane over a 4 month period raising over $142,000 (net surplus) for DEBRA. Andrew’s wife Sonia and daughter Tiffany were part of the support crew who helped make it all happen along with a dedicated committee behind the [...]
The Family Support committee has been busy over the past few months attending EB clinics and supporting families around the country with essential EB related items. Nina from Melbourne and Tara from Adelaide are two of the many applicants we have recently supported. Tara has written a lovely thank you letter expressing how much the [...]
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public [...]
DEBRA Australia has big plans in 2017. Here are just some of the major events that are happening this year, that we're excited for. Tough Tilly Day 7th January 2017 You can still grab your tickets and head away for a great weekend raising Awareness and funds for Epidermolysis Bullosa (EB). With some Australian music [...]
Who's coming to Tough Tilly Day on Saturday 7th January? Raising Awareness and funds for Epidermolysis Bullosa (EB). With some Australian music legends lined up to entertain, we invite you to bring your picnic rug and chairs and come along to support the fight against EB with 50% of all funds raised going to DEBRA [...]
The DEBRA Family Support Committee and EB Nurse in Melbourne have been extremely busy over the past 3 months supporting 2 new families who have recently become part of the EB community. Welcome gorgeous Gabriel and Charlotte along with parents Martina, Jess and Shane. Gabriel is 12 weeks old, Charlotte is 6 weeks old and [...]
DEBRA Australia Travel Grant Recipient Emma Kim Emma Kim was awarded a travel grant by DEBRA Australia to attend the 49th Australian College of Dermatologists Annual Scientific Meeting (ACD ASM 2016) held in Perth from 14th to 17th of May. Emma is a 5th year medical student studying at the University of New South Wales. [...]
EBCC Mate's Ride raises $10,000! In March some of the riders from previous EB Cross Country events got together and made their way from the Hunter Valley to the Brighter Days Festival held in Bright, Victoria. Along the way these amazing individuals donated $10,000 to DEBRA Australia. Thank you so much so all of the team [...]
A sensational 175 People crammed into the Victor Harbor Recreation Centre for The Million Dollar Run Quiz Night on the 27th May to help raise much needed funds for the Butterfly Children around Australia…as a result $5,000 was generated last Friday towards Andrew Biszczak’s minimum goal to raise $1,000,000 in ‘The Million Dollar Run’ for [...]
