STAND UP #FIGHTEB and be a voice for the
worst disease you’ve never heard of’ Epidermolysis Bullosa.

DEBRA Australia is calling for Australians to stand up during International EB Awareness Week which is the last week in October, and fight for the half a million sufferers of a disease that could leave a person with agonising blisters from something as harmless as a warm embrace.

Kids with Epidermolysis Bullosa (EB) are often called Butterfly Children, because their skin, both internally and externally, is as fragile as the wings of a butterfly.


Donate and Help Make A Difference

Throughout this week we ask you help spread awareness and create hope. Without the love and support that you all provide to DEBRA Australia we wouldn’t be able to continue to deliver life changing programs and put further money into research to one day find a cure for this painful condition.

There are so many unsung heroes in our EB community including our Mothers, Fathers, Siblings, Carers, Family, Doctors, EB Supporters, but our biggest heroes are the individuals living with EB every single day.

Together during International EB Awareness Week DEBRA organisations from around the globe create awareness of EB and to help influence local policy makers to create better services and support for those living with EB in our communities. If you are unable to donate to our cause you can always support us by writing a letter to your local government or doctor to help raise awareness of EB or share the many stories we have shared with you this week so we may help the EB Butterfly Children of Australia get the support they deserve.

As part of this week long campaign we are asking each of our supporters to make a donation this week to DEBRA Australia and help us make a difference in the lives of people living with EB.

Donate and Help Make A Difference

Also for Melbourne Cup we are requesting our supporters to hold a Dine and Donate campaign. If you are interested in hosting your own Dine and Donate event check out or email

Download Your #FIGHTEB