I became involved with DEBRA many years ago as my husband had Recessive Dystrophic EB. Sadly Alex has since passed away but his legacy lives on in his three lovely sons. I live with my three children and work full time in a leadership role at the local school in VIC. I love my work! I have the best of both worlds; I get to work with incredible teachers and support them in their work and I get to work with small groups of children.

Being a part of DEBRA is a great privilege. I feel honoured to be working with such an amazing group of people who are helping those living with EB.