Mothers are always expected to deal with plenty of knocks and bumps. Children get injured and run for a band-aid and a cuddle. And mothers make everything better… most of the time. But for an EB mother like Simone it’s different. That’s because Simone’s daughter Eliza has EB, a savage genetic condition that makes her skin blister and break constantly.
“I have never bought a box of band-aids, instead I have an entire room of specialist dressings, medicines and pain relief that Eliza needs to treat the wounds that cover 90% of her body. These wound dressings have to be changed every two days and it’s extremely painful. But unfortunately that’s only half of our EB day.”
This is Simone’s 16th Mother’s Day with her beautiful daughter Eliza. And it will be the 16th mother’s day where Eliza needs 24 hour care.
A nightmare when sleeping…
When Eliza’s blisters start healing, they itch. If she scratches the skin, it breaks – and the problem starts all over again. She tries to resist scratching when she’s awake. But when she’s asleep, she can’t stop herself. At times by the morning, her skin is blistered and torn – and her dressings can be a blood-soaked mess.
Project
DEBRA Australia works tirelessly for families suffering from the day to day debilitating and painful life of EB. DEBRA Australia supports families just like Simone and Eliza so that they are never alone through their life long journey with EB.
DEBRA offers life-changing support and programs for kid’s just like Eliza and their families. It is important for DEBRA to deliver support including our EB nurses program to provide specialist care so we can allow Mums like Simone to be Mums and not full time nurses, but none of this will happen without funding – we are asking for your help to raise $10,000 so we can keep providing support and respite to Mums like Simone.
You can give a gift of hope this mother’s day and make a huge difference to the lives of kid’s and their families living with EB.
