Here are some useful resources and products suggested by EB Families and Supporters in Australia:
If you have any products you think we should add to the list, contact firstname.lastname@example.org
Patient Information – DEBRA International’s BEST CLINICAL PRACTICE GUIDELINES for skin cancer management in EB
Range of clothes for children with EB.
Muguet Villa (Co-Owner)
Recommended by Shannon Page for crawling babies.
Air flow pram for EB babies. From Baby Time P/L
For EB Simplex use & keep feet cool. Are imported from the UK & supply adults & children. From Briggate Medical.
GELCLAIR is a viscous oral gel designed to aid in the management of lesions or ulcerations within the oral cavity.
Range of dressing retention garments for patients with Epidermolysis Bullosa.
Available via order from Defries Industries, contact email@example.com.
A comprehensive list of various suggested shoes for people with EB from Louise Stevens, a Clinical Nurse Consultant at The Sydney Childrens Hospital.