DEBRA Australia | Working for a life free from pain DEBRA
What is EB?
Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
Help us raise awareness of EB and what DEBRA Australia is doing by talking to your friends, family and work colleagues.
Get involved by fundraising yourself throughout the year, or participating in one of our annual events such as the Dine and Donate campaign during International EB Awareness Week.
DEBRA Australia is primarily run by volunteers who all selflessly use their own time to contribute. That means when you donate to DEBRA Australia the money is going directly to help support the families in need.
By leaving a bequest in your Will to DEBRA Australia you are helping us provide the support to EB families in Australia.
Current EB Trials In Australia The following clinical trials are currently enrolling individuals with EB in Australia. Anyone who is interested is encouraged to contact one of the study centres to obtain more information about [...]
What is a clinical trial and why should patients with Epidermolysis Bullosa consider getting involved with them? For the first time in history, sponsored clinical trials have arrived in EB. You may have heard of [...]
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their [...]