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What is EB?

Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.

For more information check out What is EB?

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Rare Disease Day 2017

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their [...]

Whats On In 2017

DEBRA Australia has big plans in 2017. Here are just some of the major events that are happening this year, that we're excited for. Tough Tilly Day 7th January 2017 You can still grab your [...]

Whats On: Tough Tilly Day 2017

Who's coming to Tough Tilly Day on Saturday 7th January? Raising Awareness and funds for Epidermolysis Bullosa (EB). With some Australian music legends lined up to entertain, we invite you to bring your picnic rug [...]

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