What is EB?

Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.

For more information check out What is EB?

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Who Are We?

DEBRA (Dystrophic Epidermolysis Bullosa Research Association) Australia is a not for profit volunteer based organisation that does not receive any direct Government funding.

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A world free from the painful genetic skin condition, Epidermolysis Bullosa (EB).
  • To ensure continued access to specialised EB care across Australia
  • To support EB families in improving their quality of life
  • To encourage research which develops innovative treatments towards a final cure for EB; and
  • To promote public awareness and understanding of EB

What Can You Do?

Help us raise awareness of EB and what DEBRA Australia is doing by talking to your friends, family and work colleagues.
Get involved by fundraising yourself throughout the year, or participating in one of our annual events such as the Dine and Donate campaign during International EB Awareness Week.
DEBRA Australia is primarily run by volunteers who all selflessly use their own time to contribute. That means when you donate to DEBRA Australia the money is going directly to help support the families in need.
By leaving a bequest in your Will to DEBRA Australia you are helping us provide the support to EB families in Australia.

Latest News

Research and DEBRA International Update

December 15th, 2015|

EB-CLINET and DEBRA INTERNATIONAL Conference 24-26th September 2015 For the first time, EB-Clinet and DEBRA International conferences were held at the same time and have shared one day of the programme. This resulted in a [...]

Nigel Holley Wins the DEBRA Australia Art Union

September 12th, 2015|

A big congratulations to Nigel Holley being the lucky winner of the DEBRA Australia Art Union!  

EB Camp 2015 Program now available

August 26th, 2015|

The EB Camp 2015 Program is now available for download! To all of the families who will be attending the EB Camp at Pelican Waters between the 11th - 13th September follow the link below [...]