DEBRA Australia | Working for a life free from pain DEBRA
What is EB?
Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
Help us raise awareness of EB and what DEBRA Australia is doing by talking to your friends, family and work colleagues.
Get involved by fundraising yourself throughout the year, or participating in one of our annual events such as the Dine and Donate campaign during International EB Awareness Week.
DEBRA Australia is primarily run by volunteers who all selflessly use their own time to contribute. That means when you donate to DEBRA Australia the money is going directly to help support the families in need.
By leaving a bequest in your Will to DEBRA Australia you are helping us provide the support to EB families in Australia.
The EB2017 and EB-CLINET conferences were held at the same venue in Salzburg, from 24 - 27 September 2017. They were run as two conferences with one shared day of the programme. Together, the two [...]
A huge congratulations to DEBRA Australia Ambassador Matt Bevilacqua on becoming the 2018 Nutri-Grain Ironman Series champion. After competing in the series for 5 years Matt was able to take out first place in the [...]
For babies born with EB, childbirth was excruciating and traumatic the friction can rub, causing them to appear as if they have been born without skin. This article from News.com.au covers the Clinical trials that [...]