Christmas is a time for family, a time to be together and for some of our EB families a time to remember loved ones. Christmas often means that life slows down and work comes to a halt, but one thing that never stops is the struggle for families living with EB. Your kind donation this [...]
DEBRA Australia expresses our immense appreciation for the continued support of our partner Future Generation Australia which has been supporting DEBRA Australia since 2015. This has all been done through philanthropic investment vehicles that create wealth for shareholders and support Australia’s future generation through charitable donations. By providing their services pro bono, the fund managers of these [...]
Jill is the newest member of our team and has spent the last 5 years working in communications in the Not-For-Profit and health sectors. Prior to this Jill worked as a journalist for a number of years and has a strong background in writing and social media. She always has her ear [...]
Melbourne Market Golf Day contributes grand total of $544,000 to DEBRA Australia since 2013 DEBRA Australia extends its sincerest gratitude to our Partners, Melbourne Market Golf Day. Each year since 2013, the Melbourne Market Lions Club has run a Charity Golf Day Event in support of DEBRA Australia. We acknowledge the incredible support of Fresh [...]
DEBRA Australia has set-up a wellbeing program to support teenagers, adolescents and young adults living with EB across Australia! This platform has been set up as a private Facebook Group built just for young people living with EB! It’s a space that’s safe, free and private for peer-to-peer support. Members will be [...]
We are so pleased to share this incredible article featuring our very own Ambassador, Matt Bevilacqua, for Men's Health! "When I was 16 I became the youngest person at the time to win the Tasmanian Open Ironman title – a race I went onto win three years in a row. From there I moved away [...]
We are very pleased to announce that the VIRTUAL DEBRA International Congress will be held 16th - 19th September! This is the world's largest conference on EB, connecting hundreds of experts in research, healthcare professionals, clinical management, and the EB community. This exciting event features; workshops and roundtables, 30 invited speakers as well as opening and closing [...]
Get involved, join our team and Run for EB… #teamdebra More information coming soon!
Jessika is a happy, smiley and sassy 11-year-old who loves her friends, family and dog, Coco. She enjoys crafts, drawing, shopping, talking to her friends and watching Netflix. Jessika also has a specific type of EB which is linked to Muscular Dystrophy. As a result, she is mostly wheelchair bound and will eventually be [...]
