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Family Support Update October 2017

The Family Support committee has been busy over the past few months attending EB clinics and supporting families around the country with essential EB related items. Nina from Melbourne and Tara from Adelaide are two of the many applicants we have recently supported.  Tara has written a lovely thank you letter expressing how much the [...]

2017-10-09T20:39:25+00:00 October 9th, 2017|News|0 Comments

Rare Disease Day 2017

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public [...]

2017-10-09T20:08:46+00:00 January 29th, 2017|News|0 Comments

Whats On In 2017

DEBRA Australia has big plans in 2017. Here are just some of the major events that are happening this year, that we're excited for. Tough Tilly Day 7th January 2017 You can still grab your tickets and head away for a great weekend raising Awareness and funds for Epidermolysis Bullosa (EB). With some Australian music [...]

2017-10-09T20:08:05+00:00 January 6th, 2017|News|1 Comment

Family Support Update August 2016

The DEBRA Family Support Committee and EB Nurse in Melbourne have been extremely busy over the past 3 months supporting 2 new families who have recently become part of the EB community. Welcome gorgeous Gabriel and Charlotte along with parents Martina, Jess and Shane. Gabriel is 12 weeks old, Charlotte is 6 weeks old and [...]

2017-10-09T20:08:05+00:00 August 16th, 2016|News|1 Comment

Research and Education June 2016

DEBRA Australia Travel Grant Recipient Emma Kim Emma Kim was awarded a travel grant by DEBRA Australia to attend the 49th Australian College of Dermatologists Annual Scientific Meeting (ACD ASM 2016) held in Perth from 14th to 17th of May. Emma is a 5th year medical student studying at the University of New South Wales. [...]

2017-10-09T20:08:06+00:00 June 25th, 2016|News|0 Comments

The Million Dollar Run Quiz Night – A Huge Success!

A sensational 175 People crammed into the Victor Harbor Recreation Centre for The Million Dollar Run Quiz Night on the 27th May to help raise much needed funds for the Butterfly Children around Australia…as a result $5,000 was generated last Friday towards Andrew Biszczak’s minimum goal to raise $1,000,000 in ‘The Million Dollar Run’ for [...]

2017-10-09T20:08:06+00:00 June 25th, 2016|News|0 Comments

EB Nurse Program Update June 2016

The three DEBRA funded EB Nurses based in Brisbane, Melbourne and Sydney are all doing a fantastic job.  DEBRA can’t thank them enough for their dedication and passion in caring, supporting and educating families on national basis.  If you would like to contact one of our lovely nurses, more information is available on the EB [...]

2017-10-09T20:08:06+00:00 June 25th, 2016|News|0 Comments