Join us in the fight against Epidermolysis Bullosa
Together WE can MAKE a difference
Join the epic challenge of PB4EB where you set your challenge in the month of June and spread the word to raise much needed funds for people living in Australia with Epidermolysis Bullosa ‘the worst disease you’ve never heard of’.
Two years ago we introduced our Butterfly Breaks program, which aims to provide families living with EB couples or individuals with a much-needed escape and some respite from the day-to-day of living with EB.
We understand the challenges they face and the importance of quality time together, respite, and relaxation away from hospitals and medical appointments. The community has greatly benefited from this program, and we are committed to expanding its reach. We have increased the number of Butterfly Breaks we support each year to ensure that more families and individuals with EB have access to this highly sought-after program, which significantly improves their quality of life.
Now, we need your help to continue funding and supporting more projects like this. Together, we can make a difference in the lives of these families and individuals.
You can run, jump, read, shed kilos, give up your favourite treat, by doing your personal best in the month of June you will make a difference to over 1,000 people living in Australia that go through 3 hour bleach bath’s and dressing changes every second day.
“Our Butterfly Break was such a lovely experience. We went to the beach every day, took walks, and enjoyed the beautiful scenery. We can’t express our gratitude enough to DEBRA for giving us this opportunity to take Ellsie away. We had the best time.”
Charlee – EB Mum
Why join PB4EB – Top 5 reasons!
You are challenging yourself to be the best you can be
You will be part of a team working together for change
You are making a difference in your community
You are raising critical funds to help families with EB
You will feel GREAT!
Get Involved!
Schools
PB4EB is such a great way for kids to connect with their peers, challenge themselves and make a difference all at the same time!
STUDENTS CHOOSE THEIR OWN PB4EB
Have the students choose their own PB4EB that will challenge them to do something that will be fun and engaging.
- Sign the school up
- Students set up their own fundraising page
- Share how you are going with the class
VIRTUAL DRESS DOWN DAY
Set the date for your school to get involved and have kids dress in mufti, funny dress or they can do show us your seams day’. Students wear their cloths inside out to support kids all around Australia with EB.
- Sign the school up
- School sets up the fundraising page and families and students can donate to participate
SCHOOL OR TEACHERS COME UP WITH THEIR OWN CHALLENGE
The school can set up a challenge for the students or have the teachers set up a challenge for their class.
- Sign the school up
- Students set up their own fundraising page
- Share how you are going with the class
Teams
Connect with your mates, sporting team or fitness tribe, set up a challenge together and compete for the champion trophy!
Your Group or Team can sign up to make a difference together by setting your challenge and competing to reach your ‘Personal Best’ across June.
Over 1,000 individuals currently live in Australia with Epidermolysis Bullosa and to be able to deliver our life changing programs we need your help.
Sign your team up now and spread the word
It’s as simple as setting up your team and sharing the link for people to join.
Individuals
PB4EB gives you a platform to challenge yourself, connect with your family and friends and be part of our tribe, all while making a difference.
Do your part. Make a difference.
Making a difference is such a feel good thing to do. By joining our tribe in the months of June you can make a difference in the lives of all those living with EB by challenging yourself to beat your own PB!
All you need to do is come up with your ‘Personal Best’ challenge which could be as simple or as complex as you like.
Corporates
Get your work colleagues together and join PB4EB
PB4EB gives you a platform to challenge yourself, connect with your work colleagues, build morale and work as a team.
We are asking you to set up your own tribe, come up with a challenge and compete while raising critical funds for our life changing programs.
It can be as simple as a 10,000 step a day challenge where you set up a team page, everyone joins, shares their fundraising page with their networks and can log and update their steps!
As an added bonus, how about your company matches all the donations that the tribe receives…?
What are you waiting for? Sign up today!