DEBRA Vic News - October 2011
Want to help?
If you'd like to donate to DEBRA's VIC branch to specifically help those in VIC who are living with EB, please contact Simone on (03) 9759 7727. Your generosity is greatly appreciated!
Thank you to Amelia & Stiefle Research
Stiefle Research is a Medical research company located in Rowville who hold “orange day” which supports local charities. Amelia was part of the DEBRA Australia planning session at the Novotel in St.Kilda this June and attended as our official minute taker. She did a wonderful job and it was great having her involved. We look forward to Amelia and Stiefle Research being involved with DEBRA Australia & Victoria in the future and thank Amelia for volunteering her time and contributing to our planning session.
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Carmel Harris Memorial Fund & Make A Wish....
Make a Wish foundation. Eliza’s favourite doctor, Tom Connell, referred her to Make a Wish earlier in the year and they did a fantastic job of making our trip a wonderful experience. We flew aboard the Qantas A380 airbus on the way over and returned business class on the way home. We enjoyed 2 days at Disneyland sharing a fun filled breakfast with Goofy, Chip n Dale, Pluto and other friends in Goofy’s kitchen. Eliza and her 6 year old sister Ellie enjoyed a magical tea party with the Disney princesses and had lunch in the Disney Rain Forest Cafe which came to life every 20 minutes with rainfall; gorilla’s beating their chests and elephants blowing their trunks.
Eliza was given what we called the “golden ticket” which enabled the whole family to board any ride without waiting in queues. We also spent 1 day at Universal Studios, downtown LA, Hollywood Blvd and Rodeo Drive. Eliza managed to stay well during her time away but had lots of treatment to catch up on when we she returned home.
Thank you to everyone who made this event possible and also to DEBRA Vic who kindly donated a night in the city for our family before our early departure.
Simone Baird
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Cannonball Ride...
I was fortunate enough to participate in the 2011 Cannonball Ride alongside Sue McKenna. This was in aim to raise awareness and much needed funds for DEBRA Australia and the Rapid Response Nurse Program.
This year’s route was from Bribie Island QLD to Barossa SA via Alice Springs. Two weeks, 6000kms of dirt and dust, hard work (a different kind of hard work!) and many laughs but most importantly mingling amongst communities and other travellers informing them about this rare condition.
Trail Boss “Kate” and the riders made both Sue & I feel very welcome and we now have a great appreciation of how much hard work goes into coordinating such an event. Thank you to Lindenberg & Co Mitsubishi and other Pittsworth businesses who all contributed toward Sue & me attending the ride.
Simone Baird
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