We are regularly out on the web. When we find a great site we list it here for you to enjoy. From the list below choose one of our weblink topics, then select a URL to visit.

Cristina Perez. RDEB - My name is Cristina and I'm 23 years old. I was born with Recessive Dystrophic Epidermolysis Bullosa (RDEB) which is one of the most severe forms of EB.

 

The mother of a child with a dreadful and devastating genetic skin disorder called epidermolysis bullosa eb recessive dystrophic hallopeau siemens offers not only advice and help in taking care of these babies and children but much more.

 

USA - National Institute of Arthritus, Musculoskeletal and Skin deseases

 

DermAtlas

 

Classification of the various forms of epidermolysis bullosa (EB)

 

Children and young people with life threatening conditions have very specific and unique palliative care needs, often different to those of adults. ICPCN shares a vision that these total needs should be met to encompass physical, emotional, spiritual and developmental aspects of care.

 

Australian Blistering Diseases Foundation ABDF is a non profit organisation that fundraises for research into life threatening blistering diseases, supporting patients and their families by providing information and a network of supporters with similar conditions.

 

Australian Wound Management Association AWMA is a multidisciplinary, non profit assocation consisting of people who are committed to developing and improving wound management for all individuals through education, research, communication and networks.

 

Dean was born with a very serious genetic skin disorder called Epidermolysis Bullosa.You've probably heard of it called E.B. or cotton wool babies. E.B is life long, and incurable. When I was born,I was given a life expectancy of just 5 years.

 

Royal Childrens

 

All of the Good Nu Skin leads the skin care industry with scientifically advanced ingredient technologies and skin beneficial formulas comprised of only the best ingredients.

 

Welcome to the Molnlycke Health Care Group AB - one of the world´s leading providers of single-use surgical and wound care solutions to the professional health care sector.

 

Has been supporting quality clinical outcomes for 150 years, working with healthcare professionals to provide products and services that help patients heal quickly and get back to normal life faster.

 

Vivienne and Mandy at Big Fish organise conferences, seminars, special events, road shows and parties. They specialise in team building, marketing and communications, product launches, training and incentive programmes. Big Fish are sponsors who support DebRA Australia by kindly donating their time and resources to help organise the National EB Conference.

 

DebRA - Chile