National EB Dressings Scheme in Action!

As you have probably heard, the government’s National EB Dressings Scheme has been rolled out and is being administered by BrightSky. We hope that you, like Josh Gibson (pictured), have received your first delivery of subsidised dressings.

Click here for more information on the scheme.

Left: Josh Gibson with some of the supplies he has received from the EB Dressings Scheme
 

Thanks to Warwick Foster - DebRA's Everyday Hero

Warwick Foster is a loyal supporter of DebRA Australia, and recently raised $395 for Debra by running the Sydney Morning Herald Half Marathon on 16 May.  We would like to say a huge congratulations to Warwick and thank him from the bottom of our hearts for his massive effort!  A big thank you also goes out to all of those people who supported Warwick to help him acheive this Herculean task, and to those who donated their hard earned money to Debra through Warwick's Everyday Hero page.  Every dollar really does help Debra Australia and its members.

Right:  Warwick powering through the 21km Sydney Morning Herald half marathon.

EB Survey Results

Thank you to all of our members who contributed to the EB survey DebRA Australia conducted recently. The results will be invaluable when we are lobbying government for more accessible services and treatments for you. They also show us how far we have come. Click the following links to view the results of the EB Nurse and the National EB Dressings surveys.
 

nib foundation grant funds two National part-time rapid-response EB nurses

DebRA Australia was recently awarded $100,000 over 1 year from the nib foundation which will be used to fund two National part-time rapid-response EB Nurses. This is a huge boost toward DebRA’s goal of making quality EB care accessible to all. 

DebRA Australia has joined the social networking revolution - join us on Facebook & You Tube

Check out DebRA Australia's You Tube Channel.  Become a subscriber and invite your friends to subscribe as well.  If you see any You Tube videos you think our members would be interested in seeing, let us know and we'll add them to our channel.
 
 

Next DebRA Australia EB Conference & Kids’ Camp

"DebRA News Army"

I would like to take this opportunity to personally thank the lovely volunteers from the Pittsworth State High School who help me to fold, collate and mail DebRA News each 6 months in order to get the issue out on time to all of our members around Australia.

These inspiring young adults come together of their own accord simply to help their local community and DebRA Australia, and we are very thankful that they do! We have from the front row working around the table clockwise - Sam (willing 3 year old helper), Vanessa, Alex (Mt Tyson School), Kate, Fraser, Garth and Venessa.