Simone became involved with DEBRA Victoria in a voluntary capacity after her first daughter Eliza was born with RDEB in 2000. After volunteering 10 years of her time, Simone became a part time employee of DEBRA Victoria and worked as the coordinator to help Victorian families. During this time Simone was part of the team that held establish DEBRA Australia which was a new entity set up in 2005. In 2013 DEBRA Vic joined forces with DEBRA Australia and worked as a National body. Simone was employed as the Family Support coordinator and currently assists EB families on a national level. She works as part of a team along with dedicated board mentors & the family support committee towards making a difference. Simone knows the daily struggles of living with EB & is inspired to help other families in the same situation to improve their quality of life.